tag:blogger.com,1999:blog-31945578.post115619097332263194..comments2024-03-09T01:30:23.329-05:00Comments on Gluten Free Blog: Testing for Celiac - Stool testing vs. Blood testingMike Eberharthttp://www.blogger.com/profile/16410014970702142362noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-31945578.post-26695449371520683172012-04-30T17:07:49.812-04:002012-04-30T17:07:49.812-04:00My 10 year old daughter, (now almost about to turn...My 10 year old daughter, (now almost about to turn 12) suddenly dropped 10+ pounds and began having terrible bouts of nausia and cramping. I took her to two "experts" and she through two endoscopies and multiple blood tests. No one could help us and througout the school year (last year) she looked pale, tired, complained of feeling really "out of it" and continued to slowly happy in tucsonnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-50426014370001102662011-12-07T21:29:32.599-05:002011-12-07T21:29:32.599-05:00My son was about to get tested through his school ...My son was about to get tested through his school for aspergers, he's 7. He would stim uncontrolably, self harm, rock, grunt, wouldn't make eye contact, etc. We read about the link between gluten and autism and took him off of gluten. Within 2 weeks he became completely "normal." His teacher was stunned and said he became a different kid and that testing would be pointless now. Autumnhttps://www.blogger.com/profile/05003711314502412527noreply@blogger.comtag:blogger.com,1999:blog-31945578.post-47205286916270775872011-10-22T09:43:13.232-04:002011-10-22T09:43:13.232-04:00Tried to order gluten testing, but unable to becau...Tried to order gluten testing, but unable to because I live in NY. Desperately need my 4 year old son tested for gluten sensitivity. He's speech /language delayed, sensory processing disorder, and ADD. It would be helpful to know if any of this is related to a food allergy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-17011409629943540182011-03-19T18:11:45.700-04:002011-03-19T18:11:45.700-04:00I am considering the Enterolab test. I had the bl...I am considering the Enterolab test. I had the blood tests but I had already been gluten free for 6 weeks so they were negative. <br />I had had IBS, migraines, easy bruising, asthma, memory issues, etc. for as long as I can remember. <br />I went gluten free 10 months ago and feel like a different person. <br />I am considering the lab test for verification and to check for other intolerancesLife changerhttps://www.blogger.com/profile/03401149897915541750noreply@blogger.comtag:blogger.com,1999:blog-31945578.post-83010573289441968462011-02-15T15:20:58.197-05:002011-02-15T15:20:58.197-05:00My husband and I both have Lyme disease and our Ly...My husband and I both have Lyme disease and our Lyme literate doctor approaches our treatment with a combination of prescription medications and otc suppliments. That is to say, he does not treat JUST the Lyme but instead looks at the body as a whole, since LD can affect any and all body systems. His latest "thing" seems to have ALL his patients tested for gluten intolerence through Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-68142013566378491462010-08-08T19:01:28.574-04:002010-08-08T19:01:28.574-04:00For those of you that went GF for a month and stil...For those of you that went GF for a month and still had problems, it can take up to two years to feel the full effects of a GF diet. Also, you need to be extremely careful because you still could be ingesting gluten in one way or another, especially if you're eating out. Also, my husband is a celiac and has the same reaction to corn. I've met other celiacs that have problems with corn Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-42745456068145590742010-06-17T14:32:48.086-04:002010-06-17T14:32:48.086-04:00To the blogger who hasn't found a good gluten-...To the blogger who hasn't found a good gluten-free bread, try Udi's. It's at Whole Foods, Sprouts, or order online. $5 a loaf. It keeps a week on the shelf, and you can freeze the other loaves till you need them. Don't refrigerate after thawing. Wonderful bread!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-58482757643871743602010-02-25T13:04:36.862-05:002010-02-25T13:04:36.862-05:00I had the Enterolab test done and it came back pos...I had the Enterolab test done and it came back positive for gluten, but not casein. I have eliminated gluten for about two months. I haven't seen huge improvements yet, but am still hopeful. I have had terrible mood swings which I am hoping to resolve through diet. Also terrible bloating and fatigue and unexplained anemia. I went to a hematologist for three years and never had any Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-19839686889201124092009-07-03T11:37:45.804-04:002009-07-03T11:37:45.804-04:00Like many of you. I had a negative blood test. M...Like many of you. I had a negative blood test. My tests from Enterolab came back positive for gluten and casesin (main protein in milk). Both of my parents have the genes for it. My brother tested positive for celiac but the rest of the family tests negative with blood testing. Many of them have digestive issues. I was on a gluten free diet for about 8 months prior to testing but I was not Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-43754320132581055912009-06-26T20:56:52.669-04:002009-06-26T20:56:52.669-04:00I just got test results back today from Enterolab....I just got test results back today from Enterolab. My blood tests came back negative but the stool tests came back positive. My 10 year old's blood test came back positive last year and she was cured from so many psychological issues just by going gluten free. I have constant joint pain, IBS and am constantly tired. After I sent the stool 3 weeks ago I tried to go gluten free just to see Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-82181466975935820492009-03-25T02:27:00.000-04:002009-03-25T02:27:00.000-04:00I'm so glad I found this blog as I have started my...I'm so glad I found this blog as I have started my gluten-free journey just over a week ago. When I did, I contacted a friend who I knew had Celiacs and she reommended Enterolab. She heard about it from the book The Gluten Connection. She did not personally get tested there, but once she was diagnosed with Celiacs her sister and mom did, and there tests both came back postivie for gluten and Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-86739542806958462752008-09-25T12:05:00.000-04:002008-09-25T12:05:00.000-04:006 years ago I randomly starting having grand mal s...6 years ago I randomly starting having grand mal seizures--no meds worked. Got the blood test for gluten from my Doc, came back negative. Got the test back from enterolab, said I was positive. I went on the diet and have not had a seizure in 3 years. (Doc thinks it was a random coincidence, I highly doubt it)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-4415372366353960612008-01-23T15:16:00.000-05:002008-01-23T15:16:00.000-05:00As a self employed person who has to get her own i...As a self employed person who has to get her own insurance i would like to add some comments. A day may come where you are like me. I don't want anything on my medical record that doesn't have to be( I have been turned down for non life threatening conditions). It is sad but true. The medical world cant provide relief for gluton intolerence( I have rashes, joint pain, etc.) that gluton free Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-6054499948712223892007-11-07T10:36:00.000-05:002007-11-07T10:36:00.000-05:00I am a grad student on a fixed budget with no insu...I am a grad student on a fixed budget with no insurance and did the enterolab testing as a last resort in Dec06. Because of my extremely limited finances I was only tested for gluten antibodies. In general I am feeling much better, but it took 6-9 months and without the support of a doctor it was difficult (emotionally) to keep up at times.<BR/>Now I am still suffering in some very minor ways Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-36056523508028775712007-09-22T19:03:00.000-04:002007-09-22T19:03:00.000-04:00I have had pains in my stomach my entire life (I'm...I have had pains in my stomach my entire life (I'm 47 now), with diarreah, etc. They've always said it was nerves, or irritable bowel syndrome. My 72 year old mother was diagnosed with Celiac disease in the spring, and her doctor recommended that all of her children be tested. My blood test came back negative. (Apparently the blood tests are not very reliable). I was still having a lot of Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-19990501790714795122007-07-10T23:12:00.000-04:002007-07-10T23:12:00.000-04:00Anonymous#3,Sorry to hear about the battle between...Anonymous#3,<BR/>Sorry to hear about the battle between tradition and "naturalists". I don't know what the right answer is, and maybe you'll find others with experience to share that will be helpful.<BR/><BR/>The one thing that probably couldn't hurt (aside from the pain of diet-restriction if it isn't really needed) is to try the allergen-free approach and see if life improves for your son. Mike Eberharthttps://www.blogger.com/profile/16410014970702142362noreply@blogger.comtag:blogger.com,1999:blog-31945578.post-72575371330016914612007-07-10T09:30:00.000-04:002007-07-10T09:30:00.000-04:00I'm interested in any more false postive/negative ...I'm interested in any more false postive/negative results regarding enterolab -- my son has been diagnosed with Crohn's disease, and his internal biopsies have never shown evidence of celiac, but the two enterolab tests we did both came back positive (for gluten and casein sensitivity). Our gastroenterologists (in VA and in Children's Hospital, Boston) think the stool testing is not accurate or Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-4563615929219845802006-11-27T08:23:00.000-05:002006-11-27T08:23:00.000-05:00I went through Enterolab. All of my tests were neg...I went through Enterolab. All of my tests were negative except for gluten (IgA's elevated). I had already been gluten free for a few months, but it takes time for the body to quit producing antibodies after years of gluten ingestion. It took a full year for me to rid myself of all symptoms because I continued to ingest dairy. Frequently gluten intolerant people have issues with dairy until the Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-31945578.post-1159719719545603872006-10-01T12:21:00.000-04:002006-10-01T12:21:00.000-04:00I did all of the tests ENterolab has which cost me...I did all of the tests ENterolab has which cost me seven hundred dollars...all of my tests were positive for everything they checked and I had also done biopsies which were negative and bloodtesting also that were false/positive so this was kind of a last resort. I can honestly say that after going on this very strict and almost elimating everything diet; I got down to a weight that was near Anonymousnoreply@blogger.com